Research

Research

 

Summertown Health Centre has a long history of collaborating with the National Institute for Health Research (link to NIHR website please) and we’re continually bringing new studies into our surgery.  Research helps to keep the NHS at the forefront of medical knowledge and technology and we’re very grateful whenever one of our patients takes the time to help out.  In addition, the funding we receive from taking part in research and helping to bring our patients and study teams together goes towards funding our practice so we can afford to deliver better care.  

 

Our formal privacy notice can be seen on our website, but I hope that this plain English explanation will make it clearer what we do with your data and what your rights are.

 

Below, you can see some of the posters for our active studies.  If you’re eligible, you’ll usually be invited either directly by your GP or nurse, or by receiving a text message or email.  If you think you might be eligible for a study, but you have not been invited, then you can try clicking through the posters below, or contact the surgery and ask to be put in touch with the Summertown Health Centre research team.

 

Meet our research team:

Dr Charles Luo

Dr Kyle Knox

Sarah Strange

Mandy Beckett

Tracy Kelly

Katherine Blaze

 

For more information about research, see the NIHR website:

https://www.nihr.ac.uk/documents/public-information-pack-pip-how-to-get-involved-in-nhs-public-health-and-social-care-research/27388

 

Commercial studies

 

As we go forward, we are starting to collaborate with commercial research teams in addition to doing NIHR funded research.  The NIHR is funded by you, the UK public, and is closely linked to the NHS.  Commercial research involves all of the other research that is not publicly funded.  We hope that collaborating with commercial research teams can also bring in additional funding for the practice, as well as making certain medicines and technologies available to our patients earlier and more widely than they would be available on the NHS

 

We are mindful that commercial studies need to meet the same ethical standards as publicly funded research, as well as having robust data protection and consent processes, and our surgery will not sign up to a study if we don’t feel it meets those standards.  

 

If you are taking part in a commercial research study, for example a biobank study, then your data may be used for commercial purposes such as developing new tools or drugs or technologies, but only with your explicit written consent, and your consent can be withdrawn at any time.  We will never share confidential patient data for commercial marketing or insurance purposes without your explicit consent.

 

Opting out of research

You have the right not to take part in research if you don’t want to, and this will not affect your care in any way.  If you would not like to be contacted, you can ask for a code to be placed on your medical record for the National Data Opt Out.

https://digital.nhs.uk/services/national-data-opt-out .  This means that we will remove you from invitations to take part in research, and your data will not be used for research and audit purposes.  If you change your mind, you can ask for the code to be removed from your record and you will then be invited to any studies you are eligible for in the future

 

Protecting your data

We place a lot of importance on protecting your confidential and sensitive data.  All of the research studies are bound by UK data protection laws including the GDPR https://ico.org.uk/for-organisations/uk-gdpr-guidance-and-resources/.  

 

Research studies obviously need to collect some data from you or about you.  A lot of this data can be anonymous or pseudonymous, meaning you could never be identified from the data.  For example, a study might collect your age and the fact that you have psoriasis, what medication you are taking and how often you have a flare up, and all of that data could be stored under your study identifier e.g. Participant number 109 - the data would not contain your name or address or phone number, and this would be known as pseudonymised data.  We aim to work with the study teams so that anonymised or pseudonymised data collection is the default method of data collection.

 

In some circumstances, it may not be possible for the study team to collect completely anonymised or pseudonymised data, and the study teams should make this clear to you during the consent process.  However, even when there is identifiable data being collected by the study team, we do our best to make sure that it remains completely confidential and will not be shared with anyone outside of the study team, unless you have explicitly consented.  

 

If you have shared confidential identifiable data with a study team and you wish for it to be withdrawn, you can request that the data is withdrawn as part of the UK GDPR’s “right to be forgotten” legislation.